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Internet
makes the access to enormous quantities of information of
a rapid and relatively economic way possible, from any part
of the world, 24 hours a day, 365 days of the year. These
are some of the reasons that have stimulated Fundación
Ostomía to concentrate its activity across their web
page.
Nevertheless,
Fundación Ostomía is equally conscious of that
the" strengths and opportunities " that Internet
offers in guaranteeing the efficient access to the wished
information, can transform in "threats" if there
is not constant way to guarantee the quality of the information
put to disposition, to patients and relatives alike.
For
this reason, the excellence pursued by Fundación Ostomía,
in the process of informing the decision makers across the
web´s different components, demand that a series of
requirements are established and fulfilled in order to guarantee
the strictness of the information and credit the quality
of its contents by national and international organizations.
In
search of the excellence of our web, by guaranteeing of the
quality of the information incorporated in the same, is the
main concern of Fundación Ostomía.
For this reason we have created a Scientific multidisciplinary
Committee composed by clinical doctors, surgeons and experienced
nurses, epidemiologists,
health educators, sanitary economists and researchers; who will have
the responsibility of analysing and validate the information before
to it is incorporated onto the Fundación Ostomía web. The
criteria that the Scientific Committee will apply in the
information selection process for the web, and that will
have to be taken into account by all those who want to collaborate,
in this activity, with Fundación Ostomía, are
the following ones:
- Relevance: the
information must relate with the Fundation Ostomia’s
fundamental objectives in general, and, more concisely,
with the health problems on which Fundación Ostomía
centres its attention.
- Scientific
validity: scientific information will have
to come from scientifically designed studies that have
major internal and external validity. For this reason
our initial sources of information will be controlled
clinical trials, as well as meta-analysis and systematic
reviews of the literature performed from the set
of available clinical trials in the international literature.
The
scarce use of this type of scientifically designed studies
in surgery, will force us, with certain frequency, to incorporate
scientific information proceeding from other types of studies,
such as “observational studies” or even a series
of clinical cases, characterized by their minor levels
of scientific evidence on the effectiveness and/or
safety of the diagnostic or therapeutic procedures. In
these cases Fundación Ostomía, by means of
its Scientific Committee, will try to clarify, in every
situation, the level of scientific value or evidence of
the source of the original information.
- Periodic
updates: Fundación Ostomía commits
itself to update the contents of the web in two complementary
dimensions. The first by means of the constant incorporation
of new contents in the areas of interest of the foundation.
Complementarily, the previous contents of the web will
be checked and updated, as new relevant scientific
information becomes available.
- Clarity: This
point is especially important in adjusting and modifying
the contents for the use of the general public. This
activity is of great value for Fundación Ostomía,
in its commitment in increasing the level of autonomy
of the patients in self-management of certain clinical
situations or special daily activities that worry them.
The
process of adjustment of the scientific information
to the general public starts with the same
principle as that of the selection of information
for the professionals. That is to say, that
before the adjustment the identification
of the valid scientific valid source of information
is needed. From here it is necessary to carry
out the following steps: translation, when
the original source of information used is
in another language other than Spanish; the
synthesis of the information concentrate
the message to basic; and adjust the text
to a clear and understandable language for
the general public. The latter aspect is
specially complex, tanking into account that
Fundación Ostomía extends its
area of activity to Latin-America.
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